Born: February 20, 2002
Illness: Primary Cilary Dyskensia, Asperger's Syndrome
Theme of Quilt: Space and the color blue
Alexander is 8 yrs old. He has Primary Ciliary Dyskensia and Asperger's Syndrome. He is on a PT vest for 20 min. 2 times a day and breathing treatments 4 times a day. He gets 4 shots one week and 2 shots the next week. We do this every week. Two of the shots are for Allergies and 2 are for his lungs. He was born 4 weeks early and they always told us he had severe asthma and then they thought he had CF. He was tested for CF 2 times and then they did a biopsy and found out he had PCD. He had Pnemoniua 9 times in a year before he started the shots for his lungs and the vest. Alexander also has spina biffida occulta and has to wear a back brace 12hrs a day. He has a feeding tube and has had a pic line.He has had more than 10 surgeries for his sinusis. Two this past summer.
To stitch a square for Love Quilts you will need to join the yahoo groups to see the listing of patterns that are already being stitched. It is an open group so you can sign up easily and view the patterns right away. Once you are a member you wont have to sign up again, just sign in and to make it easier yahoo allows you to stay signed in for 2 weeks at a time! Please follow this link to sign into the Love Quilts Yahoo Group...
Once there click on the link "database" on the right to view the children and their patterns. Once you find a pattern of your own that you want to stitch and have confirmed it is not already being stitched by viewing the pattern listing on the yahoo site, please link below to formally sign up for a square. If you have any questions about they yahoo groups please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!) Thanks!
