Welcome Friends!
Emma W.
Birthdate -  August 3, 2009

Main Diagnosis -    Congenital Heart Disease
THEME:  Character Animal






Biography

Emma was born with congenital heart disease. We had no idea. We
learned that she had an enlarged heart due to an xray when they suspected that
she may have RSV. We then went to a pediatric cardiologist and learned She had
to ASD's,a VSD and leaky mitral valve. So with knowing all that we are referred
to one hospital and we get there for the pre-op, but she was sick and nurses
failed to catch that right away. So 2 days later we got a second opinion from
another pediatric cardiologist. Same thing and scheduled her for surgery. Should
of been routine. The discovered a double orifice mitral valve that they weren't
able to fix 100% just polish up. Whatever that means exactly right. So she gets
out of surgery but now she needs a pacemaker because her heart as decided to go
into complete heartblock. She didn't want to be in the hospital at all. She
tried to crawl out of bed the second day in. So 7 days later we have pacemaker
surgery. 3 weeks later ultrasound to see how e
verything is going. We know she will need a pacemaker placement every 3-5yrs,
but we learned that she will most likely need valve replacement. Which is hard
because it is so bad, we were hoping she wouldn't have to have that option. but
she is a tough little girl.
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