Welcome Friends!
Ryan N.
Birthdate - July 7, 2009

Main Diagnosis -    Spinabifida, Chronic lung disease

THEME:Baby Animals




Biography

I first found out Ryan had Spina Bifida when i went for my 5 month
ultrasound. At that time they didnt think it was that bad. When she was born we
found out alot more. The first day she had her first 2 surgeries.Her Back
closure and temporary shunt. 7 more surgeries would follow in the next 12
months. permanent shunt placement, 2 shunt revissions, chairi
decompressi​on, trachostomy​, gtube,nisse​n, and nissen
revission.
When Ryan was born she couldnt breath very good. She squeaked very loud when she
would breath. After 4 months and having to do CPR on her 3 times a trache was
finally placed. Fir the first time in her little life she slept peacfully. Our
first year we basically lived at Kosiar Childrens hospital. The Nurses there are
like family now. Each time we would be admitted we would have to bring our own
baby was, laundry detergent, blankets and pillows and do our laundry there. Ryan
has VERY sensitive skin and breaks out from what ever they use in the hospital.
We havnt had to stay the night at Kosiar since june of 2010 (cross fingers lol)
But we do visit the ER frequently. about 1-2 times a month. Espically in the
winter. Ryan has Chronic lung disease so we have alot of asthma problems. She is
on albuterol and pulmacort daily. GIven everything she has been through, Ryan is
the happiest baby i have ever seen. She never cries. If she is cryingyou know
somthingis really wrong. She is our miracle baby and SUCH a blessing to us. She
has helped us as much as we helped her.
She gets therapy twice a week through first steps. SHe has a Nutiitionist, a
Speech Therapist, a Occupational Therapist, and a Physical Therapist. They are
angels. She is almost 2 and almost crawling. She is a gift from God and never
quits amazing us.
When you sign up to stitch for Love Quilts you will get a confirmation of your sign up.  If your pattern is a duplicate you will be asked to pick another pattern. 
We encourage you to join the LoveQuiltsUSA Yahoo group to check the pattern listing for duplications yourself before you sign up. 
The lists of patterns already being stitched are posted on the database.  LoveQuiltsUSA is an open group so you can sign up easily and view the patterns right away.  Please follow this link to sign into the Love Quilts Yahoo Group...

http://groups.yahoo.com/group/LoveQuiltsUSA/

Once there click on the link "database" on the right to view the children and their patterns.  Once you find a pattern  that you want to stitch and have confirmed it is not already being stitched  you may return to the sign up form, fill it in and submit it.  If you have any questions about the yahoo group please email Cyberfogie@aol.com, Vicki, for further instructions (yahoo groups email only!)  Thanks!
"THANK YOU"

We received the quilt today and LOVE It. It is so adorable. Thank you for all the prayers and love that went into making this quilt. It wil defiantly be cherished forever.
Love,
Ryan Neighbors